Thanks for your messages before the op. The surgery was done early in the morning, which meant Mari was able to come home that same day, in the evening. She is sore and will be uncomfortable for a few days but is coping well and was relieved to get it over with.
We are due to see her consultant on Thursday 5th November, when we will hopefully get the results from the biopsy. As soon as we know any thing we'll update the blog.
Thank you for all your love and prayers.
Saturday, October 31, 2009
Thursday, October 22, 2009
Update
Mari had a long day in the Bristol Royal Infirmary yesterday in preparation for her surgery which is to be next Thursday 29th. The surgeon told her they will be testing for one of four possibilities. The possibilities are; Hodgkins Lymphoma, Thymus rebound, thymoma ( a benign tumour on the thymus which would require major surgery), or a teratoma. Of these a thymic rebound would be the most preferable!
Mari will go in early on Thursday, have the surgery under a general anaesthetic and hopefully be home that day. The results from the biopsy will take 5-10 days but we are hoping they will be ready in time for her next hospital appointment on the 5th November.
We are still in a bit of a state of limbo and there is a lot of waiting around for Mari with uncertainty about what to expect so we are grateful for all of your prayer, love and support. We will let you know how the surgery goes.
Mari will go in early on Thursday, have the surgery under a general anaesthetic and hopefully be home that day. The results from the biopsy will take 5-10 days but we are hoping they will be ready in time for her next hospital appointment on the 5th November.
We are still in a bit of a state of limbo and there is a lot of waiting around for Mari with uncertainty about what to expect so we are grateful for all of your prayer, love and support. We will let you know how the surgery goes.
Monday, October 19, 2009
This week...
Thank you for all your wonderful messages! Mari is still in limbo waiting for a date for surgery. She has a pre-op appointment this Tuesday at the BRI, so we should know more then, hopefully they will give us a date for surgery. We'll let you know.
Thanks again - Love from us x
Thanks again - Love from us x
Friday, October 2, 2009
Thymic Rebound?
Today we had a very significant and interesting appointment with Mari's Oncologist.
He began by telling us that the last four PET scans have showed no progression of the disease(not even August's scan - even though at the time they said there was some new growth). He and his colleagues have been in consultation with specialists in London and have all agreed that there is grounds for reasonable doubt that Mari has Hodgkins at this point. He said that they are cautiously optomistic that it could be a condition called Thymic Rebound. This can occur as a result of chemo and gives the appearance of malignancy on a PET scan.
The next step is to do a biopsy under general anaesthetic which will give a definitive answer. This surgery should happen in 2 weeks time.
We are still in a state of shock - it has been a very surreal day. It would obviously be amazing if the results come back to show it is not Hodgkins. The Consultant said that the past 4 months must have been an emotional nightmare for us and acknowledged that they are learning in this instance because this is such a unique case. At this stage, they are planning to write up the case in the medical journals etc. - should it prove to be Thymic Rebound. Ironically, if Mari had not taken the risk of choosing to have pre-chemo treatment, she would be in the middle of a very heavy chemo regime/stem cell transplant now - and perhaps unnecessarily.
They have given us grounds for hope but will not be confirmed until we get the surgery results.
Thank you for your love, prayers and for standing with us in so many amazing ways. We'll let you know as soon as Mari has a date for surgery.
With love - Us x
He began by telling us that the last four PET scans have showed no progression of the disease(not even August's scan - even though at the time they said there was some new growth). He and his colleagues have been in consultation with specialists in London and have all agreed that there is grounds for reasonable doubt that Mari has Hodgkins at this point. He said that they are cautiously optomistic that it could be a condition called Thymic Rebound. This can occur as a result of chemo and gives the appearance of malignancy on a PET scan.
The next step is to do a biopsy under general anaesthetic which will give a definitive answer. This surgery should happen in 2 weeks time.
We are still in a state of shock - it has been a very surreal day. It would obviously be amazing if the results come back to show it is not Hodgkins. The Consultant said that the past 4 months must have been an emotional nightmare for us and acknowledged that they are learning in this instance because this is such a unique case. At this stage, they are planning to write up the case in the medical journals etc. - should it prove to be Thymic Rebound. Ironically, if Mari had not taken the risk of choosing to have pre-chemo treatment, she would be in the middle of a very heavy chemo regime/stem cell transplant now - and perhaps unnecessarily.
They have given us grounds for hope but will not be confirmed until we get the surgery results.
Thank you for your love, prayers and for standing with us in so many amazing ways. We'll let you know as soon as Mari has a date for surgery.
With love - Us x
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