Today we had a very significant and interesting appointment with Mari's Oncologist.
He began by telling us that the last four PET scans have showed no progression of the disease(not even August's scan - even though at the time they said there was some new growth). He and his colleagues have been in consultation with specialists in London and have all agreed that there is grounds for reasonable doubt that Mari has Hodgkins at this point. He said that they are cautiously optomistic that it could be a condition called Thymic Rebound. This can occur as a result of chemo and gives the appearance of malignancy on a PET scan.
The next step is to do a biopsy under general anaesthetic which will give a definitive answer. This surgery should happen in 2 weeks time.
We are still in a state of shock - it has been a very surreal day. It would obviously be amazing if the results come back to show it is not Hodgkins. The Consultant said that the past 4 months must have been an emotional nightmare for us and acknowledged that they are learning in this instance because this is such a unique case. At this stage, they are planning to write up the case in the medical journals etc. - should it prove to be Thymic Rebound. Ironically, if Mari had not taken the risk of choosing to have pre-chemo treatment, she would be in the middle of a very heavy chemo regime/stem cell transplant now - and perhaps unnecessarily.
They have given us grounds for hope but will not be confirmed until we get the surgery results.
Thank you for your love, prayers and for standing with us in so many amazing ways. We'll let you know as soon as Mari has a date for surgery.
With love - Us x
Friday, October 2, 2009
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22 comments:
We're holding out for the amazing!
Thinking of you all,
Mark & Sarah O xxx
Thinking of you Mari and hoping for good news!
Love, Caroline
I'm with my mom and dad right now in Texas. I just read your blog to them and my mom's response was "please Jesus, please, please, please with sugar on top." amen to that prayer :-) love you. -e
Well, what amazing news. Let's hope they're right. Please God may it be so.
With love to you all,
Andy and Gill
Oh wow! that is quite exciting, yes - hoping for the very best :)
Wow, what a roller coaster. Hang in there, Mari! We will continue to pray and cautiously be very optimistic.
With love,
Elliott and Linda
Heard the potential news from Dave yesterday and were very excited!
Praise God for fresh hope!
With love, The Bankses xxx
What a journey! Let's hope and pray that you'll make the medical journals.
love to you all
Chris I'A
Please Jesus, let them be right!!
Love to you all C xx
dear mari phil dave and rhi
my heart is full!
i am continuing to pray and pray and to stand firm with this news!
i loved hearing rhi's voice yesterday x
cherries i say cherries on the sugar!
love as always
jan in b xxxxxxxxxxxxxxxxxxxxxxxxxx
Thymic Rebound. I never heard of it before today but it suddenly seems so immensely desirable.
Praying for you all.
Love from Mary, Terry, Abbie and Matt Wood.
we are hoping and praying........
the harvey's
Wow, what a lot for you to take in! Hoping and praying lots for good news.
love to all of you,
Rachel x
lighthouse next week? andy
Mari, Dave & Rhi!!!!!
How fantastic is our GOD, go for gold girl, It is wonderful news and God is certainly on the move... I am so encouraged by my own healing and am believing this for you Mari!!!!!! Nothing cautious in my response i am afraid....ha ha! How exciting and amazing, You are on the cusp darling girl, do not doubt in your heart, believe and receive.....God is for you and this is the best news and can only get better. (I will grovel in sackcloth and ashes if this is not the case) but I KNOW in my heart it is, love Judi mwah xx
omg!!! Praying and backing you my sis ...all my love Del xxx
Hi, pleased to hear your news, but must be a very strange time waiting for the op and further info - will pray for peace during this in-between season, and as someone else said, cautiously hope for good news! much love, Linda
Brilliant and hopeful news. Let it be so. Jerem & Lyn
Dear Mari, Phil,Dave and Rhi,
What fantastic news!!!!! thinking and praying for you all in the next stage.
Oceans of love
Tina Perry
XXXX
That is the great news Mari.. Thinking of you;)
Mari my darling, all i can say is, in advance, 'weeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee!'
xxmelissa
Still thinking of you and sending you our love. Lisa & Phil. XX
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