Tuesday, April 8, 2008

Update from today's appointment...

Today Mari's appointment with specialists brought some sobering news. There are 4 grades of Hodgkin's Disease and Mari was warned that her condition is quite advanced... at least grade 3. On Thursday doctors will be doing two tests with the bone marrow biopsy which will clarify which grade she has.

Mari was also told today that they have found some small growths in her stomach. (this was very unexpected)

Doctors want to begin treatments asap -chemo & radiation. Tomorrow she will begin taking steroids to shrink the nodes in her chest.

There is a team of specialists that will be meeting on Monday morning and they are planning to discuss Mari's case. (This team is looking over a number of cases that morning. PLEASE PRAY that they have time to discuss Mari's case in depth). It is this team of specialists that will decide what form of chemo Mari will need to undergo.

Also on Monday Mari will be having x-rays of her chest - the outcome of this x-ray will help determine when she will be able to fly to the UK. And at 3pm on Monday she will receive the initial results of the bone marrow biopsy which will help to confirm what grade she has.

This is quite a lot of hard news for everyone to digest. Thank you for praying.

24 comments:

Unknown said...

Gosh, that is a lot to take in...I'm so sorry that it was not better news. I imagine this may all feel very frightening. I'm praying that in this yucky, wobbly place, that you will not feel on your own. That somehow knowing others are rooting for you in every possible way will make you feel strong and warm inside. We love you very much. Lisa & Phil XX

Anonymous said...

Thinking of you Mari.
We found that an anagram of Anna's diagnosis was "God is in goal. Plod on, I'm real." I pray this journey brings reality, truth and beauty to you in bucketloads.
Much love, Sarah Orrell

Unknown said...

Dear Mari, yes, thats loads of tough news to digest...but listen to the psalmists cry..."even when I walk through the dark valley of death, I will not be afraid, for You are close beside me. Your rod and your staff protect and comfort me" (Ps 23:4).

Praying this prayer over you dear one and sending loads of love your way....Debbie and Johan - Sweden

dale said...

hey precious girl
One day there seems to be a bit of breakthrough and the next another physical and emotional challenge.we keep 'standing' with you Mari.Lord Jesus let your presence and peace be Maris portion may it envelope her in the nighttime and sustain her in the day.
Love you lots
Fraser and Dale

Chris and John Lucas said...

Darling Mari
John and I are sitting here absorbing the news of your current update. We are distressed for you and your family Mari and no words can offer you too much comfort, but God can. We are continuing to pray for you Mari. Do we pray harder, No,because God hears our prayers.He knows everything about us and from far away He knows our thoughts. Who can separate us from His love? Please take all you can to get well, I will look forward to, and believe that we will see you back in NZ after you have gone through the treatment. All our love to you and yours. I am so sorry Mari that you have to go through this. Chris, and John also sends his love.

Chris and John Lucas said...

Mari, you are a brick, a champion of women, a daughter of the most high God, a loved daughter and a loved friend to many. You are a light in the darkness, a warmth to the cold,you are company to the companionless, and salt of the earth. You are a winner, a supreme champion for God, and most of all, God knows this too. He will never leave you or forsake you. He cares for you and will not let you go.

Mary said...

We're praying for you all.

Love from Mary, Terry, Abbie and Matt Wood

Jess Osmond said...

Hey beautiful Mari
Not good news, but we will continue to stand in prayer with you and your family. Please know that we are in this with you, thinking about you all the time, praying for you, and wishing this was all a dream. I hope you are sensing God's presence during this time.
Love you lots and lots
Jess

tina. said...

i do not like this news.

but i like you... a lot.

i think of you and pray for you everyday.

sending you all my aloha from over here...
xxoo

andi-jahn said...

I will be praying for you Mari.
When you are away you are always missed from Edge family.... this time even more, but I'm glad you will be with your family in the UK. We'll be tracking with you. :)

XX

Andi

sandy f said...

Hello Mariday
I send love and hold you in my heart. xx Sandy

Unknown said...

Hey Mari,
To sustain you as you ascend what must feel like a bit of a mountain...

I lift up my eyes to the hills- where does my help come from?
My help comes from the LORD, the Maker of heaven and earth.

He will not let your foot slip— he who watches over you will not slumber; indeed, he who watches over Israel will neither slumber nor sleep.

Sending so much love,
Kath, Rich + Amélie xx

Brian said...

What can I say, Mari? We all hope and pray for the best diagnosis and then this happens!
But remember - the greater the darkness the more the light shines; the more dire the circumstances, the more the love and power of our ALMIGHTY GOD can be seen; the more hopeless the situation, the more HIS glory will be demonstrated.
God will carry you through this most difficult time because He loves you with an everlasting love.
Continue to believe in Him and His care, even when it seems everything is going wrong - He will not disappoint!
All our love, Brian & Edwina

Chris and John Lucas said...

Hi Mari
Tomorrow is the bone marrow day. I hold you before God again and ask for His comfort and presence within, as you go through this procedure.I look forward to hearing how you are doing. Loving thoughts of you Mari.My thoughts are so very much with your parents as they support you through this. What could be more precious to them than "their girl". Love to Phil.

Tina D said...

Hi Mari, I hope you are ok, having had to face the doctors again. Just been sitting quietly reading out psalm 18 on your behalf. It's a long but good psalm. We love you lots and are holding the hope of God in our hands like a flaming torch in the face of the enemy.
We have been having problems trying to post stuff on the website. It can't be us, must be the computer!!.

Love Tina D xxxxxx

Linda Wilson said...

Hi Mari, Dave & Rhi, just to say we're thinking of you and praying for you. Sorry to hear the news, pray that somehow you will know God's love as an anchor thro all the difficult times... much love, Linda & Ian

Unknown said...

Dear Mari, Dave and Rhi
I wish we could all make the waiting and not knowing and enduring be over and gone for you. I keep praying, ' pour your strength in Holy Spirit'. I know hope and believe he does.
We have sent a card with a bit of news and longer message to the Fountains to forward if necessary, hope it gets to you soon.
love Helen Hill

Tina said...

Hi Mari,Phil Dave and Rhi,
It was great to hear from you. Like many of your wonderful friends,you are not far from our thoughts.
Lord, Please pour out your spirit on through and over your precious child Mari Day,give her your strength to face each day, and stages of treatment that she has to go through,surround her with perfect peace that only comes from you, and fill her with a confidence and hope that you are in control. amen. sending oceans of love to you all Tina Perry xx

Unknown said...

Dear Mari, praying for you as you go thru the bone marrow biopsy...pray that Jesus holds you in his arms and keeps your mind in total peace. Praying also for complete peace for Rhi and Dave. Loads of love, Debbie and J - Sweden

lmca said...

Hi Mari (Dave,Rhi)

Just to add our love and prayers again for you on this challenging day.
Anyway, Tina Perry's posted again, so I have to do it!
We are holding you all before God and seeking his grace for you!
Much love
Lesley & Mike

Unknown said...

Hey there Mari,

Just to say that thinking of you and praying for you every day. You've so touched my heart over the last year, and you are upmost in my thoughts. Thank God we have a great God to turn to, when all else seems dark.

Cheers

Dave C

Anonymous said...

mari love u so much cant believe how u must be feeling - sending u the largest bundle of love and hugs - xxxxxxxxxxxxxxxxxxxx
love megan xxxxxxxxxxxxxxxx

Debs said...

"We love you Mari, we do,
we love you Mari, we do,
we love you Mari, we do,
Ohhhhh, Mari Day we love you!!!!"

Thinking of you and your folks as you go through this bone marrow day and praying that things will be the most comfortable for you. I looked up what a bone marrow biopsy consisted of and it looks interesting!! You have always been a bit of a legend in my eyes, so I believe you can take on any challenge that each day throws at you!!

Lots of love to all you Days both here and there
Debs (McAllister) xxxxxxxxx

Delphina said...

Mari..I don't really know what to say sis..won't even try to begin to imagine what you, your parents, your brother and Phil are going through.

Was down @ Mt Eden (the Rock) with the boys this morn.. the words of this famous song felt so much more poignant today...they sang their hearts out ...it just felt like it was all about you ...

Through many dangers, toils, and snares, I have already come;
'tis grace hath brought me safe thus far, and grace will lead me home.

The Lord has promised good to me,
his word my hope secures;
he will my shield and portion be,
as long as life endures.

love u x0x